Hooray....He's back into the General Ed School!

As of yesterday's IEP, Caleb is back to our home school full time! He has come so far in such a short time! Per his ASD room teacher, "The gap between Caleb and the other autistic students is so wide now that it's no longer appropriate to have him here." Music to my ears........... :)

Also, during the IEP we found that he is right on grade level with reading, is passing all of his AR tests on reading, and actually is ahead of the game in a few concepts for math. He still has gaps in his learning that have to be filled in as he understands more concepts, but truly it's been an amazing day!

Caleb is having more general ed this year, with Gym class (which his Daddy teaches :) and Spanish class. We are also looking at gradually increasing his interaction with the Gen Ed students, and we'll see what happens with that.

For all who read....stick with Biomedical, homeopathy, and of course PRAYER! It works!

First week of School!

We had a great first week of school! Caleb is back into the swing of things. He quite amazed his teachers at how much he'd grown intellectually over the summer. He even began some more general ed. by wanting to take part in the Spanish Class and of course gym (which Daddy is now his teacher for). As for the school fight, it truly has helped to know my rights! They can NOT change his IEP or any type of schooling plan if I don't agree. I have made my presence known this whole week; popping in at different times to make sure he has his normal teacher and is in his normal classroom (the resource--special ed--room). I just want to encourage all who read this to google the special ed. laws in your state. Go over them with a fine tooth comb :) Here in Michigan, the schools CANNOT deny services due to funding, nor can they change a child's individualized education plan without the parent's okay. Basically, they can do nothing without the parent's consent. If they try to, contact the state, an advocate, and the schoolboard. Your child has the right to a free and appropriate education (FERPA) in the school district you live in. For my son, since he is doing so well right where he's at, his least restrictive environment (LRE) is the resource room at the general ed. school. They cannot even begin to say it should be the autism classroom all of the time. Best wishes to a happy, fun school year!

Back to the School Fight...ugh...

Unfortunately, we're back in the fight for my son's schooling. Our new Superintendent doesn't want to have the elementary Special Ed. teacher tied to her room due to having Caleb most of the day (3 days a week), and is thus trying to muscle us out of what Caleb's IEP says. After already having a conversation with her, I can see that she has no intention of giving in. Thus...without some divine intervention....we will be doing a lot of fighting! Thankfully, I now know my way around an IEP. I now know that Caleb's current IEP MUST be in place when school starts (by MI law). I also know that services cannot be cut due to funding/lack thereof reasons. In addition, if the IEP states that a child is to be in a special ed. classroom, as opposed to a gen. ed or other setting, then it must be in place. I plan on talking to this superintendent again tomorrow, and if nothing changes I'll be on the phone with board members, possibly an advocate, etc. If all else fails, all 5 of my children will go somewhere else within county. Let's see how that affects their precious budget!

The Development of Empathy

I visited Caleb's new class yesterday. I am very impressed with the teacher, as I get to know her better and watch her in action. She has infinite patience! However, I'm a bit disappointed that the classroom is so much set up like his pre-primary impaired classroom. I was hoping for a similar set-up to his last class...that is more like a school classroom, but with a few centers too. Because of this, we've decided to up his days at regular education (the special ed. classroom) to 3. Thus he'll go to this new ASD classroom only 2 days out of the week.

The class itself has only 4 students. The boy similar in ability to Caleb was absent that day, but the 2 other children were very clearly lower ability and high needs were there. That day, I got to witness something that truly brought tears to my eyes and a sweet smile to my heart :) One of the high needs students, I'll label "B." was having a day full of meltdowns. He spent most of the morning in his tent with earmuffs to keep out the noise, and a vibrating pillow to help calm him. After lunch, Caleb, the teacher, and I came back to the classroom and found B. sitting at the beanbag area. As I talked to the teacher, Caleb went over and laid next to B. on the beanbags. He gently took B.'s hand, and rubbed it as he smiled at B (and B. smiled back). They stayed in that position for several minutes. It was as if Caleb was saying, "I've been there..I feel for you!" We all marveled at the empathy and care shown between the 2 boys. No one "gets it" like they do! No matter what others may diagnose as lacking in social ability, they both proved otherwise in one small moment! After a bit, a staff member tried to get B's attention for something else, and he once again broke into a large tantrum. Caleb calmly got up and went to the lego table to free play. He wasn't phased by the tantrums one bit! It helped me really internalize that education is more than academics. No one could have reproduced this social experience of empathy by mere teaching techniques. It came from feeling a connection to another child who deals with what you deal with. It made me very glad that I have tried to do both worlds for Caleb...the autistic world, and the neurotypical world. Hopefully, he gets the best of both! Everyone needs to be able to relate to another person when it comes to struggles that we go through. Caleb and B. are no different!

**The pics are from Caleb's 8th birthday that he just celebrated last week. He loved his new Lego Toy Story & Lego Star Wars sets! **

IEP and Ice Skating

We had Caleb's IEP yesterday, and to be honest...it was the BEST one we've ever had! They are definitely on -the-ball with the transition to his new classroom. The new teacher is observing him several times, meeting with his therapists/teachers/aides, and having the old staff set up the new classroom with all of the visuals and supports he's used to. They are providing him with a social story about the new class and going over it daily. Also, they planned a "going away" bowling party for him! I'm feeling much assured that this could work, so now it's time to see it in action! The new teacher seems very kind and knowledgeable.

On a lighter note, we took the whole family (Caleb included) ice skating the other day at my sister's house. It was fun to see Caleb get the hang of it a bit, and to enjoy a new event. He did wonderful! See the picture!

Switching Classrooms again...booo!!!

Well, it's official...Caleb will be required to switch to the new autism classroom forming nearer to our home town. The state is requiring Caleb's AI classroom (which is 1 hour away) to break into another class due to overload of kids. Since Caleb is the most northern & farthest away, he will be going to the new classroom (which is 20 minutes away). I'm glad about the location, but not about another switch for him. To top it all off, the director of the AI classes resigned after Christmas, so there will be no one consistent through the process. Caleb really loves the other boys in his current classroom, coming home talking about them everyday like a little "tape recorder". He gets great therapy and has a great teaching staff there, and I can only pray that things will be similar in the new classroom.

I plan on giving the new classroom 2 weeks to transition, and then I'll observe it's set-up and running. If need be, I can increase Caleb's number of regular special-education from 2 days to 3 days. Right now, Caleb goes Monday, Tuesday, and Thursday to the AI classroom, along with Wednesday, and Friday to regular school special education. Oh the decisions and headaches we parents must go through for our autistic children! I can see already that this coming IEP on Monday is going to be a long one!

Christmas Program 2009

This year's Christmas Program at our school was themed, "A Charlie Brown Christmas". I really thought Caleb would be skipping it this year because when asked to practice he refused to go :( However...when he saw the theme, he LOVED it! When the time came to sing, he did wonderfully! He loved every minute of it and pleasantly surprised all involved! I attached the video clip, so take a look! (Caleb is the 2nd from the end...with black hair).

School Update--September

Hooray for more great days! Just talked to Caleb's teacher yesterday (of his autism class), and she talked how they see him as the "highest in the class". They see what I see...that he's smart! She said, "I see some behaviors, but I don't think they're a big deal". Whereas, our local school district views little behaviors as major problems. Just so happy with this new setup thus far!

Caleb's mood is doing great! We've stumbled upon something that's been working for him. Last time we went to the DAN doctor, he suggested that yeast was most likely still the culprit and that it was something called "biofilm" (where the yeast secretes it's own mucus to protect itself & thus is hard to kill). I researched a bit on biofilm, and the protocol for it. It sounds like first higher doses of Magnesium (such as oxypowder) or Vitamin C to get the kid to have a BM. Then a protease enzyme (such as mucostop) to get rid of the mucous, then a bunch of herbs known to kill yeast. Well...I didn't have all of these things, but I started with vitamin C and magnesium, then added in several proteases (later in the day) , then gave a 2 to 3 cap dose of a yeast herb blend (at bedtime). I did this for about a week. Now, we just maintain with 2 chewable vitamin C, and 2 caps of yeast herbs both in the morning before school. Voila! It works at maintaining his mood. It obviously WAS the yeast after all. It just needed a bit of a different tactic! No more screaming/screeching, and no more bad mood! Hooray!

Back to School! Hooray!

School has started again! Caleb is doing dual enrollment between an autistic classroom (for 3-5th grades; but he's in 2nd grade) and then aspecial ed. classroom at our local school. He's doing 3 days in the autism class, and 2 days here in special ed. The hope is that he will develop more "ready to learn" behaviors, and also that our local school will be able to work one-on-one with autism experts to best be able to meet Caleb's needs in later years. They were VERY clueless last year. Anyhow, the first day went well! I'm excited to see what each day brings.

We've managed to tame Caleb's moods again (for about the last month or so). It seems that a natural yeast fighter, as well as an enzyme twice a day, and a multivit/min are doing the trick. So glad his mood is improved for the start of school! That way all can get to know him and like him before mood issues arise. He seems to be VERY ready for the challenge of school again, and looks forward each morning to going. I hope this continues. Keep praying! God has been so good thus far!

**the picture is of him getting off his bus the first day**

Summertime..when the living is easy?

Not a lot new and exciting. Summer's winding down, and we're beginning to think about school. Caleb's summer school went very well at his new autism classroom. He'll be doing 3 days in this class and 2 days at our local school. The goal is that this asd teacher will help guide our school district on how to plan for him, as well as handle any behavior. The asd classroom is about an hour away (a 2 hour bus ride), otherwise we'd just do that every day. I love what I've seen so far though! He comes home saying, "If you get angry...take a time out." I smile when I hear that :) So many times I've said the same thing, but it takes a teacher to get it to stick! We also have adopted the asd teacher's tactic of taking his hat (which he MUST wear at all times...a bit of an ocd/sensory thing) when he screams. He avoids screaming now, so we won't take his hat. Now, why didn't I think of that before?! Anyhow...still sometimes a bit of a rollercoaster ride this autism, but we're getting somewhere.

Hope all are having a fun summer! Oh...the pic is of Caleb catching a fish. Afterwards, he got bored and just kept casting his line into the weeds and trees :) But...he caught his first fish!

Decison Making

We went and visited the autism classroom at the elementary school. Although it was set up nicely and the staff was well versed in autism, it left much to be desired. Caleb was far and aways TOOOOO high for that class. He would be the only verbal child, and the only one working on reading skills and math. They suggested we look at the classroom for 3-5th grade autistic children. We went to that school and saw a much better fit for Caleb. It was set up more like a classroom and the children were working on actual educational goals...like reading and math. Because I'm still concerned about socialization, Caleb losing connection with the great class he has at our home school, and then our home school not being prepared for him to return in a year or 2....we are contemplating a dual enrollment. Caleb would be enroled at the autism school 3 days a week, and our home regular ed class 2 days a week with it written in his IEP that upon successful achievement of listed behaviors he will return gradually to his home school (regular ed). Hopefully by then the staff will have had some help in setting up his education to best suit him...not the teachers. That's really the problem. If they'd just look beyond the behaviors to focus on his education and how best to teach him...we'd have none of this crap. Instead, they all want to make it easier on themselves and get him out of the school. I'll have none of it! I'm not "dumbing him down" and taking away his best asset--that of incredible intelligence--so he can go be part of an autistic classroom where he's not pushed nor expected to succeed. This is a child who's on the verge of normalcy, but still struggles with erratic behavior at times. I would just love to see these teachers go observe some autism classrooms to see just how far Caleb has come! Sigh.....I may end up homeschooling yet! Let's face it...no one will see the good in my son like I will. I just don't want to do Caleb a disservice, so I continue to fight.

We Had A Better Week...hooray!

Things seem to be going much more smoothly now! Hooray for now! We met with the autistic consultant from our county along with the principal, OT, special ed. teacher, and 1st grade teacher. The AI consultant had much advice to give, and once the teacher realized it wasn't a critique of her teaching, but more advice on how best to reach Caleb, things went very smoothly. It seems breakfast was a major source of tension for Caleb because he wanted what he couldn't have. Now, we have a sack lunch (from the lunchroom w/ things he can have) waiting for him in the Special Ed. room after he gets off the bus in the morning. He will get to have his breakfast & play computer games for 1/2 hour in the morning. That should give a good start to his day, and hopefully make it go smoother. The AI consultant also talked to the teacher about the necessity of a visual schedule and visual reminders. The teacher was mostly relying on her words being enough for Caleb to understand what's expected, but it was most likely getting him confused & frustrated. The reminders might not be needed later, but for now (since EVERYTHING has changed from last year), it will be added security for Caleb. I really like the AI lady because she reiterated that it isn't his fault for getting frustrated, that it's part of autism. The teacher had said, "But how will I implement these strategies in a room of 32 kids?", and the AI consultant said, "We aren't going to worry about that now. Let's zero in on Caleb & what's best for him, and worry about the rest later." I SO appreciated another professional being able to get through to the school. So, for now....I'm a bit more relaxed :) Better yet....so is Caleb!

I'll still go in on Tues. and Thurs. mornings to help out, and also I'll meet again with his school team to go over any other trouble spots in Caleb's day, but so far the fight has been successfull! Just think how easy the next ASD kids & families will have it :) Which reminds me....that for our district of 500 students, we have about 8-9 children that are possibly on the spectrum. That's much higher than the 1 in 150 statistic! We're much closer to the 1 in 50 or 60 that England is quoting. All who read this: keep praying for this country, these children, and their families!

Also, I hope to soon have some informational posts on dealing with IEPs, the law on education, and resources in your county. Keep watching!

Disillusionment sets in at School

Well, the excitement was short-lived as reality hit us like a brick. Caleb's educators are NOT trained in autism. I have had a phone call nearly every day this last week because he's not doing something right. This after they let him eat whatever he wants at lunch just to avoid a scene. Finally, we had a meeting with the principal & demanded an aide to be next to him. One that travels from year to year to give him security and boundaries. We also demanded TRAINING! It really isn't the teacher's fault as she is being forced to teach 32 children, 1 possible autistic child, and 1 definitely autistic child (Caleb). This, while 1/2 the class rotates to another teacher a few hours a day. It is controlled chaos! However, it isn't Caleb's fault, and he's TOTALLY capable of handling first grade. After all, the days I went and sat next to him, he did everything the other children did! This was surprising to the educators because they just don't understand his capabilities. We shall see what this week brings as a new aide should arise and training, hopefully, will be scheduled.

TO SCHOOL!

School started TODAY! Here's some great pictures of the kids. (Caleb's in yellow). I hope things go well. The older boys will make sure Caleb finds his class okay & doesn't head to last year's room. Otherwise, I'm praying all day for all 3 of them! Oh...I almost forgot! Caleb learned to RIDE A TWO WHEELER BIKE yesterday!! Hooray! We were at some friends playing volleyball, and all they had were regular kid bikes with no training wheels. Caleb found one his size, pushed off, and away he went! Just like he'd always been doing it! NO MORE TRAINING WHEELS! It was just last year that he learned to pedal, now he's riding a two-wheeler like any normal kid! Hopefully school goes just as well and easy as riding a bike :)